PatientsLikeMe.com: Online community of patients, doctors, and organizations

PatientsLikeMe.com was launched in 2004 by "three MIT engineers." It is described as:

a privately funded company dedicated to making a difference in the lives of patients diagnosed with life-changing diseases. Our personal experiences with ALS (Lou Gehrig's disease) inspired us to create a community of patients, doctors, and organizations that inspires, informs, and empowers individuals. We're committed to providing patients with access to the tools, information, and experiences that they need to take control of their disease.

For more, visit: http://www.patientslikeme.com

Picking Up the Pieces: Moving Forward after Surviving Cancer workshop

Time sensitive
Registration required by: Friday, April 11th

Picking Up the Pieces: Moving Forward after Surviving Cancer for women with ovarian & gyn cancers
This workshop helps survivors:

• acknowledge changes
• grieve losses
• regain control
• explore possibilities
• adjust to their new normal

Date: Saturday, April 26, 2008
Check-in: 8:30 am
Session: 9 am – 4 pm
Location: The Shadbolt Centre for the Arts
6450 Deer Lake Avenue, Burnaby, BC

Free registration includes lunch & refreshments
Limited enrollment
Registration required by: Friday, April 11th

To register: 1-877-413-7970, ext. 221
or online at http://www.ovariancanada.org

We would like to thank the Hilton Vancouver Metrotown for their generous support of this event. Rooms are available at $135.00 per night, single or double occupancy for those traveling from out of town. Tel 604-438-1200

This workshop will be facilitated by Sherri Magee Ph.D., co-author of the book
Picking Up the Pieces: Moving Forward After Surviving Cancer

Bipolar Disorder: A review of Medication & Self-management Strategies

TIME SENSITIVE

Bipolar Disorder: A review of Medication & Self-management Strategies is an education night for consumers and their families

July 10th, 2007
7:00 - 9:00 pm
UBC Robson Square Theatre
800 Robson Street
Vancouver, BC

Pre-registration required (seating limited)
Cost: $5.00 (waived in cases of financial hardship)

Contact:
Heather Armstrong
UBC Mood Disorders Centre
Room 2C7-2255 Wesbrook Mall
Vancouver, BC V6T 2A1
phone 604-822-8045
email hla@interchange.ubc.ca

A flyer with speakers and topics is available.

Summer '07 "Tips for Living Well" newsletter is out!

The summer issue of Tips for Living Well newsletter from the BC Coalition of People with Disabilities' Wellness & Disability Initiative is hot off the press! If you subscribe to the paper copy, you'll be receiving your issue soon. If you access the PDF version from our website, you can start reading today.

In this issue ...

• Learning the Language of Feelings by Mark Linden O'Meara (an excerpt from his book, The Feeling Soul)
• Living with Hope--a video about hope and people with terminal illness
• How to Support a Family Caregiver--a new booklet about supporting caregivers from the UVIC Centre on Aging
• Watermelon Anyone?--more about watermelons than you could ever want to know!
• Pets & Wellness--a special two-page spread with pictures and pet news
• HIV/AIDS Reality Check column--this issue is information from Health Canada about condoms
• Top Tag Pet ID--a nifty flash drive containing all that important info about your pet... worn as an ID tag
• Access to Health Awards--it's not too soon to begin thinking about who you will nominate for the 2007 awards. Deadline for nominations is October 31st.
• Living a Health Life with Chronic Conditions--this program is now available throughout BC
• Cleaners and Pesticides Can Be Fatal--use them properly, or better yet, use alternatives
• Seven Myths about Irritable Bowel Syndrome
• Tips for Living Well--headache tips, laughter, improving your memory, and volunteering
• Most People with Arthritis Don't Get Enough Exercise
• Sunscreen and Summer Sun Safety
• Online Book Helps Children Understand the Effects of Stroke
• Transient Ischemic Attacks (TIAs)--a personal account

Don't miss out. Subscriptions to the paper copy are free in Canada. Contact wdi@bccpd.bc.ca to subscribe or to order multiple copies for your office or organization.

"Mind Matters: BC's Mental Health E-news"

Mind Matters is published by the Canadian Mental Health Association's (CMHA) BC Division. Delivered to your email box each month, Mind Matters contains "CMHA news, programs, resources and events in BC, as well as:

• mental health news and research
• new mental health programs and resources in BC
• public education events
• courses, workshops and conferences for people with mental illness, family, friends, caregivers, advocates, and health/mental health professionals.

The following selected headlines from the June 2007 issue of Mind Matters provide an example of the range of information available:

• Coping with Suicidal Thoughts ... a short guide
• New Look and Video Resources for AnxietyBC Website
• DepressionLifelines.ca is a new website that connects you to the knowledge accumulated by mental health organizations across Canada
• The latest edition of CMHA Ontario Division's Network magazine, now available online, reflects on the theme of social inclusion
• Family Matters – A Tool for Teens is a new online resource from mindyourmind.ca
• New Website for Parents of Kids with Special Needs--Our Special Kids is a web resource for parents of children with special needs who are looking for information relevant to their situation and understanding from others
• Planning Guidelines for: Mental Health and addiction Services for children, Youth and Adults with Developmental Disability is available in PDF format at http://www.healthservices.gov.bc.ca/
• Working Effectively With Interpreters in a Mental Health Setting
• BC Launches Pilot Program for Parents of Children with Mental Illness
• Scientists Encouraged to Focus on Psychological Needs of Cancer Survivors
• Mental Illness Targeted by Workplace Screening Program
• Movie Mondays in Victoria
• Frames of Mind Mental Health Film Series – I Have Tourettes But Tourettes Doesn’t Have Me
• New Writing Group for People With Mental Illness

Read back issues or subscribe to Mind Matters at http://www.cmha.bc.ca/news_events/enews.

"Shared Voices" MS Society Newsletter great source of tips

Shared Voices is an excellent newsletter published by the MS Society of Canada's Lower Mainland chapter. The Summer 2007 issue is packed with terrific information for people living with MS—much of it of interest to people with other types of disabilities or health conditions as well. Copies are available at the website. Check out this issue for the following items and more:

• tips for keeping cool during the summer heat (p. 1-2)
• a report on a Nordic Pole Walking Workshop at the WestEnd MS Support Group (p.3)
• Lower Mainland Chapter educational workshop September 22nd 2007 (p. 4)
• A Light-hearted Parody of Your Summer Horoscope (p. 6-7)
• information about accessible pools, beaches, and musical events in the Lower Mainland
• Massage and more ... information about the West Coast College of Massage Therapy's Inreach Program for people living with MS. Over a 14-week term, massage therapy students provide weekly 60 minute massages (under supervision). "Besides the many benefits of massage, a mini support group usually develops. Some have found their fear of becoming less mobile lessens when they see those who use various aids—canes, walkers, wheelchairs and scooters—living successfully." (p. 5)
• Therapeutic and Research Issues: Mitoxantrone (might-oh-zan-trone) (p. 4)

Note: The West Coast College of Massage Therapy is located in New Westminster. Each massage is $10.00. The program is currently full, but if you're interested, call Brenda at 604-451-8616 to be placed on a cancellation list.

Living a Healthy Life with Chronic Conditions

A health education program to help people with chronic conditions—such as arthritis, diabetes, heart disease, asthma, fibromyalgia, depression and others—manage their illness is available throughout British Columbia. The Chronic Disease Self-Management Program, “Living a Healthy Life with Chronic Conditions,” developed by the University of Victoria’s Centre on Aging, is free.

Trained and certified local volunteers, many living with chronic health conditions themselves, deliver the program in pairs once a week for six weeks. Groups take eight to 15 participants and each session lasts two-and-a-half hours.

The program offers practical tips on how to cope with the emotional and physical challenges of day-to-day living with a chronic condition. The sessions provide participants with skills for gaining more control over their illness and for boosting their self-confidence. The program, which receives funding from the BC Ministry of Health, is also open to friends, family and caregivers of people with chronic conditions.

For more information, or to register for one of the six-week courses, call the toll-free line at 1-866-902-3767 or visit the website at http://www.coag.uvic.ca/cdsmp.